Huntington's Disease Care at BIDMC | |
The Interdisciplinary Clinic for Huntington's Disease at Beth Israel Deaconess Medical Center offers comprehensive care for Huntington's Disease. Our team, led by neurologists Samuel Frank, MD, and Simon Laganiere, MD, employ an innovative, holistic approach, bringing together experts from various disciplines to provide personalized and cutting-edge treatments.
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At the 2024 Huntington Study Group Annual Meeting in Cincinnati, BIDMC was proudly represented by Dr. Samuel Frank, Dr. Simon Laganiere, and their dedicated teams.
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Collaborations with Long Term Care Facilities
Our HDSA Center of Excellence is partnered with several long-term care facilities across the region, such as Tewksbury Hospital, Braintree Manor Healthcare, and the Incompasss Group Home in Tyngsborough Massachusetts. Our physicians Dr. Sam Frank and Dr. Simon Laganiere dedicate some of their time to serve the patients in these long and short term care facilities.
Learn more about our facilities and how to get in touch with them here.
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Please take this survey to help us better understand your perspective on research participation. | |
Enrolling Clinical Trials | |
At BIDMC, we work hard to make our patients' lives better. Clinical trials are an important part of this work, and we encourage our patients to check out the different treatments being studied. | |
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Study on Genetic Markers in Huntington’s Disease
The Huntington’s disease Center of Excellence at BIDMC is inviting individuals with Huntington’s
disease to participate in an observational study from Hoffman La Roche Therapeutics. The purpose of this study is to examine genetic markers in Huntington’s disease and help develop potential targets for future clinical studies. Patients who enroll in this study will attend one in-person study visit and give up to a tablespoon of blood for analysis.
Inclusion Criteria:
- Confirmed diagnosis of Huntington’s disease.
- Able to give informed consent.
- Between 25 and 60 years old.
- Able to tolerate a single blood draw.
- Able to travel to Beth Israel Deaconess Medical Center in Boston for one in-person study visit.
Other inclusion and exclusion criteria apply. For more information, contact Clemi Ullman at 617-667-2355 or at cullman@bidmc.harvard.edu.
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Enroll-HD is a global research platform dedicated to improving care and advancing treatments for Huntington’s disease. By participating, individuals and families contribute to critical studies that explore the disease’s progression, genetics, and potential therapies. Learn more and get involved at Enroll-HD.
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Support Huntington's Disease Research at Curling for a Cure 2025
Join the Huntington’s Disease Society of America (HDSA) for Curling for a Cure 2025, an event dedicated to raising awareness and funds for critical research, programs, and services supporting individuals and families impacted by Huntington’s disease. Whether you're new to curling or experienced, your participation helps drive progress toward a cure.
Date: Saturday, 3/1
Location:
Broomstones Curling Club
1 Curling Lane / 138 Rice Road
Wayland, MA 01778
Time: 11:00am
Learn more and register
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Join us at Top Golf in Canton for a delicious Brunch Buffet, 3 hours of gameplay, soft drinks, and social time on the beautiful outdoor golf deck or private room with TV's, all to benefit the Huntington Disease Society of America's innovations and research.
Date: Sunday, 4/27
Location:
TopGolf - Canton
777 Dedham Street
Canton, MA 02021
Time: 10:00am (check-in), 10:30am (brunch & golf bays open)
Register here.
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Enjoy a lovely jazz brunch at the Braeburn Country Club in West Newtown on Sunday, May 4th.
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Join the 2025 Fourth Annual Golf for a Cure
Take part in the Fourth Annual Golf for a Cure, hosted by the Huntington’s Disease Society of America (HDSA). This event brings golfers together to support groundbreaking research, critical services, and programs for those affected by Huntington’s disease. Whether you're an avid golfer or a beginner, your participation makes a meaningful impact.
Date: Monday, 5/12
Location:
Springfield Country Club
1375 Elm Street
West Springfield, MA, 01089
Time: 11:00am (Check-in & Lunch); 12:30pm (Shot-gun start)
Learn more and register
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The "Team Hope Walk" in Boston is a community event dedicated to raising awareness and funds for Huntington's disease research and support programs. Participants join together for a scenic walk, united in their mission to improve the lives of those affected by Huntington's disease.
Date: Saturday, 6/7
Location:
Castle Island
2010 William J. Day Blvd.
South Boston, MA 02127
Time: 9am (check-in); 10am (walk begins)
Register here.
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Our patients inspire us every day. Together, we strive to make progress, enhance our understanding, and improve the lives of those suffering with Huntington's Disease. Stay connected, and let's journey forward with hope and determination.
Thank you for your time!
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Please note that this newsletter is intended for informational purposes only, no need to reply to this email. | | | | |
