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Understanding patient-reported outcome measures in Huntington disease: at what point is cognitive impairment related to poor measurement reliability?

Carlozzi, N E, S Schilling, A L Kratz, J S Paulsen, S Frank, and J C Stout. 2018. “Understanding Patient-Reported Outcome Measures in Huntington Disease: At What Point Is Cognitive Impairment Related to Poor Measurement Reliability?”. Quality of Life Research : An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation 27 (10): 2541-55.

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Áine Russell

Áine Russell is the CORTEX Program Manager at BIDMC. She joined CORTEX in 2023 after previously working with Parkinson's disease in the Movement Disorders Center at BIDMC. She is originally from the Boston area and has a Master's in Public Health in Epidemiology from Boston University. In her free...