InfoSAGE: Supporting Elders and Families through Online Family Networks

San Francisco, CA

To be presented at AMIA 2018 Symposium - Session  S53: Oral Presentation on November 5, 2018 from 3:30 PM to 5:00 PM.


Yuri QUINTANA, PhD1,2, Darren FAHY1,  Bradley CROTTY, MD4, Ruchira JAIN1, Eli KALDANY1, Maxwell GORENBERG1, Lewis LIPSITZ MD2,3, Diane ENGORN3, Jorge RODRIGUEZ MD1,2, Alex ORFANOS1, Adarsha BAJRACHARYA, MD1, Juan HENAO, MD1, May ADRA, PharmD1, David SKERRY, Warner V SLACK MD1,2, Charles SAFRAN MD1,2
1Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA
2Harvard Medical School, Boston, MA
3Institute for Aging Research, Hebrew SeniorLife, Boston, MA
4Medical College of Wisconsin, Milwaukee, WI

With an increasingly elderly population, families are finding it increasingly challenging to coordinate care for their older family members. This paper reports on the findings of InfoSAGE, an online private social network that has tools for communication and care coordination for elders and their families. The InfoSAGE system has 257 registered users; 52 of these opted into an in-depth longitudinal study. A descriptive analysis of these early participants, the online family networks, and barriers to participation that were encountered are presented.