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Protocol Title: Huntington’s Disease Repository
PI: Samuel Frank, MD
PAINT Website and Newsletter Recruitment Language
The HD repository is a database of people with Huntington’s disease (HD) or at-risk for HD who have participated in and/or may be interested in future research participation opportunities. The additional healthy participants will be used a comparison on performance for different tasks. If you join our HD repository, we will collect and store HD-related information so that we can better match you to studies that you may qualify for.
You may be eligible to participate if you:
- Have Huntington’s disease or are gene-positive for Huntington’s disease
- Are a healthy control (i.e. gene-negative or not blood-related to a carrier of the HD gene)
- Are interested in hearing about HD research opportunities
Contact: hdresearch@bidmc.harvard.edu or 617-667-5231