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Q: How do I add a user to my REDCap project?

To Add a User Those with admin privileges may grant other users access to the project. Before adding a new user to the project, please ensure these individuals have been added to the appropriate IRB protocol and have completed CITI training, if applicable. Once this is complete, log in to REDCap and...

Q: How do I use Roles to manage Users?

A role is a group of users that have the same permissions. Using roles makes managing user access faster and more organized; it is a recommended best practice. When you add a user to a role, they automatically assume the permissions of the role. If you remove a user from a role, they initially...

Does It Cost Money To Participate?

No. The study does not charge participants. Materials are provided for free. Participants are provided with a small stipend associated with survey completion.

Q: How do I remove a user from a project?

Removing a user only impacts their access to the project; it will not delete/remove any records they have created or other work they have done in the project. If a user has left a study, we encourage removing them from User Rights so that only the current users are listed. A user can always be re...

Huntinton's Disease Repository

Protocol Title: Huntington’s Disease Repository PI: Samuel Frank, MD PAINT Website and Newsletter Recruitment Language The HD repository is a database of people with Huntington’s disease (HD) or at-risk for HD who have participated in and/or may be interested in future research participation...

When Does The Study Start?

The study recruits interested participants on a rolling basis. We are constantly seeking interested people. The treatment intervention is provided several times a year.